Tag Archives: needy

Cars, Kids and the Concert

I just wanted to follow up my previous posts with some updates. First of all, it turns out we were fully insured. Insurance deemed the car a total loss and paid us out. We were able to find a minivan at a reasonable price and are getting some repairs done Friday to make it last us a while. Felix continues to do amazing at physical therapy except for the last couple days, when he just wants to be held all the time. I’m sure a big part of that is the fact that he’s teething. He’s gotten one tooth and the second one isn’t far behind.But anyway, Felix can roll front to back and back to front now, and when he does the exercise when he’s on his tummy on his boppy, he’s getting strong enough to push himself off and over it. He’s also really been studying faces lately. I’m so proud of his progress.

Andy got his braces off today! He had them for 3.5-4 years, with a jaw surgery during that time. He said it feels weird and a little sore. But he’s happy.

Evan had court today to review his court ordered outpatient committal. The judge dismissed the case, saying Evan was no longer a threat to himself or others. But he’s gotten 2 criminal charges and has violated his probation (recently). I told him the ruling may seem like a good thing, but what it really means is that now when he decides to act a fool, he can’t hide behind mental health. He will just be treated like a criminal. He faces a judge about his second criminal charge soon.

Jarrod had a really good time at Riot Fest despite his shitty adventure on the way home. He got to see a couple bands in particular he was very excited to see: Guided By Voices and Ween. I’m glad he was able to go and enjoy himself, even if I was unable to join him. Hopefully I get so fortunate as to be able to go to a concert soon.

Left: Guided By Voices โ€” Right: Ween, photos by Jarrod

I finally saw a doctor about a few things I had been avoiding and/or putting off. Nothing too serious. I’m not going to go into any of that right now because Felix is starting to wake up from his mini nap and I don’t have time to type about it. I’ll update again soon.

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Felix Began Physical Therapy

This is a video update about Felix’s first day in physical therapy. I will do a more detailed update at the end of the week. Thanks for watching.

We NEED Help

WE NEED HELP. PLEASE CHECK OUT OUR GOFUNDME PAGE.

Felix has seen a specialist and is in need of lots of therapy. Details on the campaign page. Please help. And share, share, share, far and wide. Thank you for your help.

Felix is 6 Months Old!

Felix is six months old! He had his six month check up today, and updated his vaccines. He was running a little behind on vaccines because for his four month check up he was fighting quite the virus. It turns out he had CMV. If you don’t know what CMV is, I very strongly suggest that you research it. I knew nothing about it before Felix was diagnosed as having had it. I believe he contracted it after he was born rather than in utero, so we have that working in our favor. However, since the symptoms last so long, his development is delayed a bit. That would be why he wasn’t meeting his milestones or doing much of anything for a couple of months earlier in his life.

However, as of today, the doctor and nurse both are not concerned with the way Felix behaves or appears in the doctor’s office. The nurse has been doing her job for well over 20 years, and said Felix seems like a pretty average six month old baby now. As of today, Felix is 16 lbs. 10 oz., and 26 1/2 inches long. He is in the 30th-40th percentile for baby boys of his age. It seems odd to me that he is so small on the percentile chart now, when he was so huge when he was born. But he’s been growing on that path all along, so that is clearly the size he was meant to be. There is no concern there.

Developmentally, when it comes to his milestones, he is a little behind still. I truly believe it was because he was feeling crummy for so long, however he does still have an AEA evaluation and developmental specialist evaluation next week. We want to cover all of our bases so that if there is an issue, we can address it early so Felix has the best chance at having a typical childhood.

As of yesterday, Felix started rolling front to back a little, and understands how to roll back to front with help. When he gets put into a bouncer seat, he scoots his butt forward until his feet touch the ground, and then he scoots out of it. He sits up without support for a few moments at a time, but likes to throw himself backwards so we have to be careful. He still isn’t good about eye contact, but he is looking at things and tracking movements much better. and he absolutely loves playing around with our new piano. I swear he’s going to be a piano star when he gets older. Lol. Other things he likes are going swimming, taking baths, and most of all, the porch smoking. When he is having a bad day, and is the most upset, we can sit on the porch swing together and he’s happy for the time we’re there. He has also started solids, and really loves meal times. He is still breast-fed for the rest of the time.

Overall Felix is a pretty happy, good spirited young man. But when he’s having a bad day, everyone knows it, and there’s not a whole lot we can do to get him past it besides just get through the day. I’m hoping with time, the bad days are fewer and further between, filled in by many more happy days. He is such a joy to be around when he is in a good mood.

Milestone Concerns

Anxiety is not my friend, never has been. Nor is sitting at home with Felix day after day being totally immersed in his fussiness while Jarrod works to support our family. I see other babies in my birth month group on Facebook doing all the typical milestones for Felixโ€™s age either on time or ahead, smiling, giggling, going out and doing fun things with their families. I look at Felix… and heโ€™s behind. Not behind by far, but enough that I tend to dwell on it. And his fussiness generally keeps us home, making me feel trapped. Iโ€™ve spent many hours (most days) trying to keep him appeased. Usually with little success, until this past week. This past week I decided two things.

First of all, rather than be frustrated and resisting the reality of Felixโ€™s temperament, I decided to accept and embrace it. This is who he is and it wonโ€™t be changed. Heโ€™s my buddy anyway, no matter what. So Iโ€™m doing my best to go with the flow.

Second, rather than dwell on all my anxiety over his milestones, I downloaded an app on my phone called BabySparks. Iโ€™ve been using it to do developmental activities with Felix every day. Iโ€™m putting my worries to work by working with him to develop the skills in which he is behind. Just in the last five or six days Iโ€™ve already begun to see improvements. Which is keeping him active and happy with the benefit of also easing some of my fears.

Tummy time, cuddles, a popsicle, and a Bumbo seat!

I never really thought about milestones or any such thing with my older boys when they were babies. Iโ€™m not sure why Iโ€™m so worried about it now. Back then I just went with what they could do at the time and we were all happy. They all reached their milestones when they were ready and are all perfectly fine teenagers now. I think maybe all the online comparisons are getting to me, not sure. But Iโ€™m tired of being worried. In a few months it will be a distant memory and Felix will be just where heโ€™s supposed to be, after reaching those milestones on his own terms, when HE is ready.

As for some of the fussiness and tummy pains Felix still has lingering on, we have been referred to a specialist by his doctor. He sees the specialist in a couple weeks. Iโ€™m not terribly worried that something is wrong, but there are still things Iโ€™d like answers for. And hopefully it will makes Felixโ€™s life a little easier to have those answers and potential solutions.

But as for this and everything else, weโ€™re just taking things one day at a time.