Tag Archives: cmv

Felix is 8 Months Old!

Felix is 8 months old today! In the last month he has really blossomed. Whatever funk he was in for the first 6 months of his life has definitely passed.

Things he does now:

โ€ข Looks at faces, makes eye contact, smiles, and has stranger anxiety.

โ€ข Rolls front to back, back to front.

โ€ข Reaches up and out with his hands to grabs objects.

โ€ข Sits for a few moments at a time, with improvement every day.

โ€ข Stays on hands and knees for a few moments with help.

โ€ข Squeals, babbles, and razzes all the time.

โ€ข Enjoys bath time (and swimming at the Y).

โ€ข Likes playing games and singing, like โ€œPat-A-Cakeโ€ and โ€œItsy Bitsy Spider.โ€

โ€ข Actively and happily participates in physical therapy at appointments and at home.

โ€ข Drinks breastmilk on demand, and eats purรฉed baby food twice a day.

โ€ข Sleeps in his crib (no longer his bassinet) for longer stretches of time at night. But still doesnโ€™t nap well.

โ€ข Still prefers the outdoors.

Iโ€™m sure there are a few things Iโ€™m missing. But these are all big changes that came all at once. He also got his 6 month shots today since he was on a delayed schedule due to his previous CMV infection. At his appointment he weighed 18 lbs 1 oz, and was 27 inches tall.

Now if I could just get him to smile for a picture, it would be really helpful for these monthly updates. Haha!

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We NEED Help

WE NEED HELP. PLEASE CHECK OUT OUR GOFUNDME PAGE.

Felix has seen a specialist and is in need of lots of therapy. Details on the campaign page. Please help. And share, share, share, far and wide. Thank you for your help.

Felix is 6 Months Old!

Felix is six months old! He had his six month check up today, and updated his vaccines. He was running a little behind on vaccines because for his four month check up he was fighting quite the virus. It turns out he had CMV. If you don’t know what CMV is, I very strongly suggest that you research it. I knew nothing about it before Felix was diagnosed as having had it. I believe he contracted it after he was born rather than in utero, so we have that working in our favor. However, since the symptoms last so long, his development is delayed a bit. That would be why he wasn’t meeting his milestones or doing much of anything for a couple of months earlier in his life.

However, as of today, the doctor and nurse both are not concerned with the way Felix behaves or appears in the doctor’s office. The nurse has been doing her job for well over 20 years, and said Felix seems like a pretty average six month old baby now. As of today, Felix is 16 lbs. 10 oz., and 26 1/2 inches long. He is in the 30th-40th percentile for baby boys of his age. It seems odd to me that he is so small on the percentile chart now, when he was so huge when he was born. But he’s been growing on that path all along, so that is clearly the size he was meant to be. There is no concern there.

Developmentally, when it comes to his milestones, he is a little behind still. I truly believe it was because he was feeling crummy for so long, however he does still have an AEA evaluation and developmental specialist evaluation next week. We want to cover all of our bases so that if there is an issue, we can address it early so Felix has the best chance at having a typical childhood.

As of yesterday, Felix started rolling front to back a little, and understands how to roll back to front with help. When he gets put into a bouncer seat, he scoots his butt forward until his feet touch the ground, and then he scoots out of it. He sits up without support for a few moments at a time, but likes to throw himself backwards so we have to be careful. He still isn’t good about eye contact, but he is looking at things and tracking movements much better. and he absolutely loves playing around with our new piano. I swear he’s going to be a piano star when he gets older. Lol. Other things he likes are going swimming, taking baths, and most of all, the porch smoking. When he is having a bad day, and is the most upset, we can sit on the porch swing together and he’s happy for the time we’re there. He has also started solids, and really loves meal times. He is still breast-fed for the rest of the time.

Overall Felix is a pretty happy, good spirited young man. But when he’s having a bad day, everyone knows it, and there’s not a whole lot we can do to get him past it besides just get through the day. I’m hoping with time, the bad days are fewer and further between, filled in by many more happy days. He is such a joy to be around when he is in a good mood.

Social Media Anxiety

In July, I left Facebook for a while.ย  The only reason I don’t leave permanently is because I have friends and family on there that I do not otherwise connect with, and I don’t want to lose touch.ย  But anyway, here’s why I took the break: social media induced anxiety.ย  Comparisons to others’ lives, mostly surrounding Felix.ย  As I’ve mentioned before, we have some concerns about his developmental milestones, and possible delays.ย  I’m a member of a few support groups of people with babies born around the same time as Felix, and for a while it felt like all of those babies were growing in leaps and bounds while Felix was lagging back fairly drastically.ย  He had “colic” or tummy pains for what seemed like forever, and still continues to have more mild pains occasionally, at 6 months old.ย  He wasn’t making eye contact, reaching for toys, or using his hands much for a long time either.ย  Seeing all the other babies around the same age doing all of their typical age-appropriate behaviors was making me feel like not only a bad parent, but extremely worried for the future of our baby.ย  What if he is handicapped?ย  What if we have a child who will not have a normal life?ย  What if he will require assistance beyond what I ever imagined?ย  And I went further and further down that spiral.

Once I broke free of those groups, and realized I needed to quit comparing Felix to the rest of the world, I started to accept our reality rather quickly.ย  I started to gain some clarity, and ease back from the severe and dark anxiety cloud that was looming over my head.ย  And I started to come to terms with the fact that Felix is not every other baby.ย  He is his own very unique person.ย  And that’s NOT a bad, scary thing.

Once I got that clarity, I started doing things to help him out.ย  I downloaded BabySparks (app), and have been working with Felix every day that he feels up to it.ย  I found more ways to entertain and soothe him, and haven’t always been distracted by my phone.ย  I have accepted him for who he is instead of trying to gain control over something that is not controllable.ย  And after all of that, I know now he’s not as delayed as I thought he was.ย  Now that he’s feeling better and is over most of the tummy issues, he is catching up.ย  He’s making more eye contact.ย  He’s smiling and giggling more.ย  He’s babbling, playing, and interacting much more.

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Spending time in nature, just the 2 of us.

We do still have appointments with developmental specialists just in case there is more we need to do.ย  But after breaking free of social media for a while, and connecting with Felix on a deeper level, one-on-one, without comparisons to other babies, I believe we are in a much better place.ย  *I* am in a much better place, with less anxiety and more happiness and joy for my baby, which makes him a happier boy too.

Felix will have his 6-month checkup on Friday the 9th, and I will post an update on his measurements and all that he can do after that appointment.ย  He has grown and changed so much in the last month.ย  And Jarrod and I are so proud of him.